Patient Advocacy
At Amicus, the lived experiences of patients guide how we think, act, and innovate — every day.
From Our Chief Patient Officer
At Amicus, our mission begins and ends with the people living with rare diseases — patients, caregivers, families, and the communities that support them.
Across every function, all around the world, we are building lasting relationships that help us understand what matters most to patients, caregivers, and families, whose voices and lived experiences are not only heard but also meaningfully integrated into how we design therapies, shape programs, and measure success.
We are immensely grateful to the rare disease community and families living with Pompe disease, Fabry, and FSGS for their willingness to share their experiences and expertise with us.
Tiffany Patrick
Chief Patient Officer
For information on Fabry disease, please refer to the following resources:
The following websites offer additional information and support for individuals and families living with Fabry disease:
For information on Pompe disease, please refer to the following resources:
The following websites offer additional information and support for individuals and families living with Pompe disease: