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Home >> Patient Advocacy >> Patient Advisory Boards
Patient Advisory Boards at Amicus Therapeutics
Overview
Amicus recognizes the importance of direct feedback and input from the patient community, equal to the input medical colleagues receive through Medical Advisory Boards and science colleagues receive through Scientific Advisory Boards. That is why Amicus established the Patient Advisory Board (PAB) Program in 2008, to add another dimension to our partnership with the patient community.
PAB Membership
The purpose of a PAB is to bring together a group of informed individuals that represent a diversity of age and geography, and have a connection to the broader patient community beyond their own personal disease experience. Meetings typically are conducted twice yearly. Membership on an Amicus PAB is a two-year commitment and members are vetted through a nominating/application process.
PAB Scope
PAB members share their insights and knowledge on a range of topics including the design and implementation of clinical studies, patient advocacy activities, reimbursement programs and other topics. The scope may change as Amicus seeks different types of input throughout the drug development process.
PABs Making at Difference at Amicus
Amicus takes pride in working together with the patient community to bring the best information, services and care possible to patients with rare diseases. With the help of the patient organizations and their leaders, PABs will continue to play an important role at Amicus and other companies in the future.
To learn more about the Patient Advisory Boards please contact: patientadvocacy@amicusrx.com
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Amicus Therapeutics is committed to improving the lives of patients and families affected by rare and orphan diseases.
Glossary
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